‘Cancer doesn’t care’: Civic lobbyists unite to push back on Washington’s ugly policies

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Picture of a monument in downtown Washington, D.C., capital letters spelling out "He hopes" Illuminated as people walk around.
Despite persistent rain, volunteers from across the country and the political spectrum gathered on the National Mall in Washington, D.C., recently to commemorate people who have died of cancer, as part of an annual volunteer drive organized by the American Cancer Society’s Cancer Action Network.(Charlotte Kessel for KFF Health News)

Mary Katherine Johnson is a retired small business owner from outside Rochester, New York. I voted for Donald Trump three times.

Lexi Milling, who worked in a doctor’s office, is from Long Island. It’s a democracy.

But women share a common bond. They both survived breast cancer.

And when the American Cancer Society’s Cancer Action Network organized its annual Citizens’ Lobby Day in Washington last month, Johnson and Melling were among more than 500 volunteers pushing Congress to keep cancer research and cancer support at the top of the nation’s health care agenda.

This day is a ritual for groups like the Cancer Foundation.

Portrait of an elderly woman wearing a blue shirt and standing on a gray background.

Mary Katherine Johnson is a breast cancer survivor and former small business owner. She lives outside of Rochester, New York. (Charlotte Kessel for KFF Health News)

Portrait of a woman wearing a blue shirt standing on a brown background.

Lexi Milling is a breast cancer survivor who lives on Long Island, New York. She was working in a doctor’s office. (Charlotte Kessel for KFF Health News)

This year, it came as Democrats and Republicans in Washington slid toward a budget impasse that shut down the federal government. But these volunteers transcended their political differences and found common ground.

“No one here discussed whether you were a Democrat or a Republican,” said Milling, one of 27 volunteers in the New York delegation. “Cancer doesn’t care.”

Every volunteer lobbyist has been affected in one way or another by the deadly disease, which is expected to kill More than 600,000 People in the United States this year.

Johnson said that each of her mother’s ten siblings died of cancer, and her life’s friend also died at the age of 57, leaving behind his wife and two young daughters.

Like many volunteers in New York, Johnson also said she is concerned about today’s political situation.

“I think we’re probably the most divided we’ve ever been,” she said. “It scares me. It scares me for my grandchildren.”

Katie Martin, a cancer volunteer from outside Buffalo, is also concerned. She and her daughter recently drove past political protesters yelling at each other in the street.

“My daughter is silent and then starts asking: What is this?” “I don’t know how to explain it, because it doesn’t even make sense to me,” she said. “It’s absolutely heartbreaking.”

Portrait of a woman wearing a blue shirt standing on a gray background.
Katie Martin lost a close friend to cancer. She is a family law attorney out of Buffalo, New York.(Charlotte Kessel for KFF Health News)

Milling said she can barely watch the news these days. “A lot of Americans are feeling very stressed. There are a lot of things going on.”

Americans are already divided on many issues — immigration, guns, and President Trump. But polls show that helping people with cancer and other serious illnesses has broad bipartisan support.

in One recent poll7 in 10 voters said it is very important for the federal government to fund medical research. This included a majority of Democrats and Republicans.

“It’s rare in today’s environment to see numbers like this,” said Garrett Lewis, a Republican pollster who conducted the survey of patient groups. “But almost everyone in this country knows someone who has had cancer.”

Likewise, recently KFF poll It found that three-quarters of US adults, including most Republicans who align with the Make America Great Again movement, or MAGA, want Congress to extend subsidies that help Americans buy health insurance through the Affordable Care Act’s marketplaces.

These subsidies, which are critical for people with chronic diseases like cancer, are among the major sticking points in the current budget impasse in Congress.

As cancer volunteers gathered at a conference hotel in Washington, they focused on their shared agenda: increasing funding for cancer research, retaining insurance subsidies, and expanding access to cancer screenings.

“We may not agree on the political level. We may not even agree on the social conditions,” said Martin, the Buffalo-area volunteer. “But we can see beyond those differences because we are here for one reason.”

Close-up of white paper bags carrying messages of hope and remembrance for people affected by cancer.

American Cancer Society Cancer Action Network volunteers from all 50 states decorated about 10,000 white paper bags bearing messages of hope and remembrance for people with cancer. (Charlotte Kessel for KFF Health News)

An image of a path next to a body of water. The path is lit with memorial white paper bags for people who have died of cancer.

After lawmakers visited on Capitol Hill, hundreds of volunteers from the American Cancer Society’s Cancer Action Network gathered for a candlelight vigil in Constitution Gardens along the National Mall in Washington. Each state had a pole commemorating a former volunteer who died of cancer. (Charlotte Kessel for KFF Health News)

State delegations rehearsed the presentations they would make to their members of Congress. They went through the personal stories they would share. They shared tips on how to deal with resistant employees and how to ask for a photo with a lawmaker.

On the morning of their lobby day, they reconvened in a large ballroom, decorated in matching blue polo shirts and armed with red information folders to leave each office they would visit.

They received a pep talk from a pair of college basketball coaches. Then they headed across town to Capitol Hill.

The army of volunteers – from every state in the country – hit 484 of the 535 House and Senate offices.

Not every visit was an unqualified victory. Many Republican lawmakers object to extending insurance subsidies, arguing that they are too expensive.

But lawmakers from both parties have supported increasing research funding and supporting more cancer screenings.

New Yorkers felt good about that day. “It was amazing,” Melling said as the day ended. “You can just feel the feeling of ‘everyone is stronger together.’”

When evening fell, volunteers gathered on the National Mall for a candlelight vigil. It was raining. She played the bagpipes.

Around a pond near the Lincoln Memorial, about 10,000 tea lights in small paper bags twinkle. Each star had a name on it – a life affected by cancer.

Portrait of an elderly man wearing a blue shirt on a gray background.
John Manna, whose father died of lung cancer, is a retired attorney who lives in New York’s Hudson Valley.(Charlotte Kessel for KFF Health News)

John Manna, another New Yorker, describes himself as a Reagan Republican whose father died of lung cancer. He thought about the lessons this day could offer a divided nation.

“Talk to people,” he said. “Get to know each other as people, and then you can understand someone’s positions. We have a few disagreements, but, you know, we don’t attack each other. We talk and discuss it.”

Manna said he will be back next year.

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